Rare Diseases and Orphan Drugs

Hypothalamic and Pituitary Conditions

Rare pituitary diseases are a group of colorful clinical runs with low frequence ( main groups 100- 500 million, specific conditions inheritable diseases less than 1 million) taking multidisciplinary and lifelong care because of the central endocrine function of the pituitary, its position in the vicinity of the optical system and the hypothalamus and the associated pituitary hormone disturbance limit QoL and long- term functional outgrowth depending on the specific underpinning complaint, performing in multisystem morbidity.

We've linked 3 sub thematic groups within the pituitary MTG, grounded on different multidisciplinary platoon and different individual and treatment approaches pituitary adenoma, natural hypopituitarism, acquired hypopituitarism. Within the pituitary network we aim to further characterize moxie by creating subsubnetworks fastening on specific ultra-rare conditions (or diagnostics or interventions) within the sub thematic groups.