Rare Diseases and Orphan Drugs

Rare Pulmonary Diseases

Pneumonic fibrosis might be an uncommon lung illness that causes irreversible scarring of the lungs, which may cause windedness and an industrious hack, and logically deteriorates after some time. Furthermore, in light of the fact that there is no fix, an analysis of pneumonic fibrosis can raise a ton of feelings for the two patients and guardians. American Lung Association Better Breathers Clubs are face to face grown-up care groups that give respiratory wellbeing data and assets. Near 500 cross country have essentially served people living with constant obstructive pneumonic infection (COPD) – a lung illness that additionally deteriorates over the long run and has no fix. We've currently made strides, with help from Three Lakes Partners, to all the more likely prepare this program to serve those living with aspiratory fibrosis and their parental figures that face comparative issues as those confronting COPD and other constant lung sicknesses.

• 
  Beryllium disease


• 
  Birt-Hogg-Dube syndrome


• 
  Blau syndrome


• 
  Brain-lung-thyroid syndrome


• 
  Bronchiolitis obliterans


• 
  Bronchiolitis obliterans organizing pneumonia


• 
  Bronchogenic cyst

Related Associations of Rare Diseases Research:

Alzheimer's disease Organizations, Ann & Robert H. Lurie Children’s Hospital, Birmingham children’s Hospital, Boston Children’s Hospital, Canadian Organization for Rare Diseases, Chicago Rare Disease Foundation, Children’s hospital of Pittsburgh, National Alliances for Rare Diseases, National Institute of Health (NIH), National Organization for Rare Diseases, NDC Medicine, Rare Diseases Patient Association Funding, Rare Diseases South Africa, Rare Diseases Translational Research Collaboration.