7^th Annual Summit on Rare Diseases and Orphan Drugs September 13-14, 2022 London, UK

Sanjay Somasundaram co-founded a technology start-up Eichiba Inc (USA) and learning’s from there helped him closely understand the commercial model of such companies. As a physician, he has experience in the pharmaceutical industry across clinical medicine, research, marketing and access. He was lead for the rare disease access program in Pfizer for five years. He and his co-author have extensively interacted with all stakeholders in the rare disease ecosystem including governments, public health experts, regulators, doctors, caregivers and patients to develop deep insights into their unmet needs and look for potential solutions.

Rare Diseases Eco System

Rizwan Arshad is a young public health researcher having 13 years of experience on accessibility of medicines (ATM) primarily hard to hard to find medicines including rare and orphan drugs for the vulnerable patients in Pakistan. Currently he is working on the model development of one window services model (OWSM) for the accessibility of cancer immunotherapies and orphan/rare drugs on named patient basis. It is his research model and core interest area as well. He has been associated with many organizations as a consultant for the alignment of health services along with regulatory authorities and identification of gaps in health for the communities and provides the solutions thereof. He is also responsible for making an outreach to peripheries within the country for the accessibility of quality drugs to the community people.

Rare Diseases Drug and orphan drug

Dalal R Fatani is an aspiring ophthalmologist aiming to continue my career growth and further expand my knowledge, surgical skills, and research contributions in the field. She is member of the king Saud medical city training unit to promote resident’s wellbeing and facilitate their journey. She is Producer and host of an educational podcast directed towards ophthalmology residents. Certified Suba diving (advanced level diver), Mountain climbing (local hiking excursions, Mount Kilimanjaro for Animal rights and welfare, Mount Shams in Oman for GCC fitness), Animal rescue activities with Open Paws Riyadh, and Reading (self-improvement and parenting books).

Lacrimal sac lymphomas in pediatric age group